| Well
what a year it has been. Jada just gets happier and easier all the time.
We are still on all diets gluten free, raw dairy (our own cow ) sugar
free, and SCD refer to our first page for more info on that. We stay
away from box food , can food and raise our own meat.
I really think to get all the improvements we have gotten in Jada
keeping her on all the above diets is imperative this goes on twenty
four hours a day 7 days a week, even on Birthdays and Christmas.
Today I was going through some old receipts 2 years ago I bought Jada a
big expensive 5 point harness car seat so I could keep her in her seat.
She had grown out of the old one in weight and would not stay in a
booster seat. Well today she sits in a booster and puts on her belt ,
how thing have changed in such a short time. Not that long ago she
started telling me she loved me that was a great day for me. Just the
other night Jada asked for a kiss goodnight she had not done that since
she was 1 year old. Life is getting easier for us as a
family it almost seems normal, we can anywhere even hotels and Play land
it can be a fun experience for the whole family Below is a
testimonial I wrote for the X-Cell Center in Germany
My husband and I
are extremely pleased with the progress that Jada had made since
February 2010. The positive changes in Jada have made our whole family
life much better in every way. Jada will tell me she loves me, where as
before she could not tell me how she felt. Jada is much calmer,
happier, sleeps better, speaks more in sentences about her thoughts and
need, she is more adaptable to changes in daily life. Jada can now dress
herself and all her personal hygiene. Jada greets people, where as
before she had no interest. Before when her grand parents would come
over to visit she would not even bother to say hi , now they are greeted
with a big hi grandma, hi grandpa.
Our
stress level as parents dealing with a child that has autism was
extreme. Now our stress level has greatly gone down. Jada's own stress
level and frustration level has gotten much better. As time goes by
with her healing process her quality of life is getting better by the
day. There is not a week that goes by that Jada doesn't do something new
and unexpected. December 3 2010 Ken came home after work, Jada was
sitting at the computer watching a movie she said " Hi Dad How was your
day " that was the first time ever she had said that.
Below are some
letters from people that know and work with Jada.
written Oct 12
2010
Hi Shannon , I
would like to mention that I only work with Jada for therapeutic
swimming. I am sure there are many more things that have improved for
Jada that I am not aware of because of my lack of knowledge of her
everyday routines.
I have worked
with Jada weekly on an ongoing basis for one full year of Therapeutic
Swimming (T.R. swimming).
The routine in
the past has been that Jada and myself with two other E.A's. and two
other therapeutic swimmers meet at the pool with the Speech Therapist
and Physiotherapist in a social, physical, emotional, cognitive
therapeutic swim session.
We all get got
into the pool and adjusted to the water for approximately 10 minutes. At
that time the group got together and played social games with balls and
other pool toys. The purpose was to improve social interaction skills,
improve gross motor skills and speech therapy skills among other
benefits.
On Wednesday,
October 6th, we had our first week of swimming in the second year. I
have noticed some significant changes in her.
*Jada in the
past has yelled for me to stop singing if I was singing. This week while
in the pool I started to sing a short rhyming song to her. She did not
ask me to stop. When I asked her to sing with me she sang the main
chorus of the song with me! Later I asked her to sing and she sang the
same part again on her own!
*Jada last
year, would only walk down the steps of the pool and stand on the stairs
for the first part of her session. In the latter half she would sit on
the edge of the pool and play social games with the other
participants and leaders of the program. At times she was required to
stand on the island (small platform) and actively participate by
standing up in the pool with the others. She was required to walk to the
end of the platform at least once a session. This was not an easy task
for her, but she was successful.
*This week Jada
swam around the pool from the shallow end of the pool to the deep
end twice using a noodle. She swam down to the end of the pool and rang
the bell that is attached to the swinging rope.
* This week
Jada swam (with her noodle) to the middle of the pool edge, exited the
pool and entered the hot tub. In the past Jada would only leave the
pool via the stairs or the edge of the pool and walk down to the hot
tub.
*This
week Jada played in the hot tub without needing to walk around the edges
or having to ask other swimmers to excuse her.
*This week the
pool staff had put out 3 islands for our use. Jada went from island to
island without any problems using her noodle.
*This week Jada
shared the small plastic kiddies' pool with her brother and me. Jada
added water and splashed around.
It should be
noted that one of the other students was on the pool side due to a
stomach ache. The Speech Therapist was also away. The E.A. from the
other school was also delayed in getting into the pool, therefore the
Physiotherapist supported her student until the E.A was present. Jada's
younger brother and her mother were also there. The routine that we
normally did was not facilitated due to so many changes and
disruptions. It will be very interesting to see Jada actively
participating in the regular program in the future. I am very excited to
be working with Jada and her team. Jada has improved immensely since
June and I look forward to seeing what other achievements she will
master in future sessions.
Thanks,
Ardice McCrea
Education
Assistant / Therapeutic Recreation
Fulford
Elementary School
________________________________________________________________
Observations about Jada's changes:
written October 12 2010
1. I think what strikes me the most is how affectionate she has become
since going to Germany. Before going, she really did not want any body
contact at all. If I tried to tickle her, she'd ask for 'stop'.
Immediately after her stem cell replacement she began to like being
tickled and we even began having a 'tickle' break in the sunshine room.
She enjoyed being rolled up into a hotdog with mats. Since that time,
she has become very affectionate and really likes body contact, and
often initiates it herself. Whereas before, she wouldn't have anything
to do with funny interactive rhymes and songs such as 'Three little
monkeys swinging on a tree...', now she asks for them and loves them. It
helps in redirecting Jada and keeping her busy and happy during
stressful times and waiting times. We also can have lots of fun together
now as she joins in with this type of play. Much more playful! She seeks
interactions much more.
2. Jada is more relaxed. I've noticed so much more improvement since
she's come back from summer holidays. She doesn't need the bathroom door
locked anymore, lights are not an issue, she joins the class on the rug
with no problem, and even though she still takes the white board and
markers with her, she usually doesn't even bother writing anything. She
may protest over something, but seems to get over it much quicker and
accept what she needs to do. Jada can wait with much more patience than
before. Lining up and waiting for the bus at the end of the day is not
an issue at all. She is able to wait in class lineups easily.
3. Jada's improvement with initiating greetings with adults, using
their names, was amazing after she returned from Germany. Last spring,
she would go down the hall and happily say "Hi ________" to various
adults. She even greeted a few peer, though not always with the correct
name. She continues to do that this Fall, but perhaps not as much as
last Spring. But she always says hi when prompted.
4. This Fall we've seen Jada interacting with peer during choice so
much more that last year. She's very interested in what the kids are
doing, and gets right in there playing with them when they're playing
Marbleworks, etc.. She's not yet very verbal with the others, but
interacts by physically joining them and using their creations with
them, rather than just parallel play.
5. Last Spring I really noticed how much more verbal Jada had become.
She was able to sequence cards and tell me about the order of sequence
using her own words. I would show her picture cards and ask her to tell
me 'the story' and she was able to tell me what was happening in the
picture. It was a huge improvement. Very exciting.
6. She's been able to express how she's feeling so much more. When
she's unhappy, she will use descriptive words to express her tears, etc.
I hope this is helpful. If I think of other changes, I'll email you
them. I'm sure I'll remember more as time goes on. Elodie
_____________________________________________________________
written Oct 3 2010
Shannon, Jada,
the 8 year old.
I hadn't seen
her for a number of weeks because of colds and flu in the family. I was
in for a surprise!
I walked into
the room where Jada was alone. Instantly she greeted me with a big warm
smile of recognition and a "Hi Grandma" in a clear voice tone. Her
beautiful dark eyes met mine and I felt that deep connection that had
often been so illusive in the past. She hugged me and then after a
couple of minutes ran down the hall to her room. She came back a short
time later, when her Mom was there and continued to interact with both
of us giving me more hugs. She wanted me to pick her up but understood
and didn't pursue the matter when I told her that she was too heavy for
me.
Helen, the
Happy Grandma
______________________________________________________________
I would totally
recommend X-Cell center for stem cell treatment. It has made huge
positive changes in our lives. We are able to have a normal life going
to stores, school, out for meals , with all good behaviour. We are
planning to take our son Kaden in 2011. Please feel free to email us if
you have any question. Ken & Shannon Tara Salt Spring Island BC Canada.
shannontara@shaw.ca
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