Stem Cell Therapy for Treatment of Autism 

MathRider - The Intelligent Math Game
I just want to let you all know about the above software. It works great, our kids love it. Our 10 year son even uses it to brush up on his timetables . He improved  over just one weekend .he is in grade 4 .

PAGE one

Ken and I are always looking for ways to make our children's recovery in  autism, a  reality.  We had been doing the diet for 2  1/2 years it works amazing along with all the other things we do.  Our kids just keep improving every month.  We had always know about stem cell therapy offered around the world for autism. But what we did not know is X Cell Center in Germany has a  clinic. I was very excited to hear about the clinic. I went online to their  web-site it was extremely informative, It answered every question I had. The X Cell center did not make any promises . So on February 2 2010  we  decided to  send Jada and I to Germany for her stem cell therapy. Our two biggest obstacles  were money and getting Jada a MRI            ( a requirement of X Cell Center )  After a few days of pondering how we would come up with the $ 9000 euro and travel expenses we decided to cash some of our  Retirement  savings.  The wait for the MRI in BC would of been too long, so we opted for a private clinic. It was expensive but then we didn't have to wait,   Jada had to have general anaesthesia   for the MRI because she was unable to lay still for 45 minutes.                                                                                                                                                                                

We flew out of Vancouver BC Canada to  Düsseldorf Germany February 20 2010.  It was a long flight, Jada was just an angel. she only slept 45 minutes the whole time.  As promised         X cell Center had a driver with a sign waiting for us at the airport, he was extremely helpful.  It was around 8 when we got in so Jada and I bathed and went to bed. With great anticipation of the impending week it was hard for me to sleep.  We had appointment at the X Cell in the afternoon on Monday. We met with Dr. Uta Kristein Tamaschke, MD, neurosurgeon and Dr. Aladin Elsisi, MD, is Chief of Anaesthesiology X Cell-Center. They were both very nice and spoke impeccable English. I walked away feeling confident I would not wake up in the middle of the night in a cold sweat worrying about the extraction of her bone marrow  the next day.    The driver picked us up the next day and took us to the X Cell Center, he escorted us in and walked us into the hospital to the Center. I really expected him to just drop me off outside and I would have to find my way in. It was so great. 

  I could hardly sleep thinking about what this whole trip meant for Jada. Would it change her life? Would it make her life easier? Would it make no difference at all?  It was a very emotional day for me.  Maybe it was because I was so far from home and tired, and I missed my family.  I was so hopeful this  trip would change her life and make her as healthy as she could be. The next morning we woke up early and had a big breakfast.

We were picked up at our hotel by X Cell Center, once again the driver was very nice.  He took us inside.

 

 

 

 

 As we waited  Jada played games on nintendo .  ( A note  to all parents that don't like video games, neither do I . It really did make out trip a lot easier. )   She seemed so calm.  She had no idea the importance of this day as she sat so happily waiting for her time.  It all went very fast. The doctor came and got us, I went with Jada.
The Anaesthesiologist was so skilled, before Jada could complain too much about the IV in her arm she was off to sleep. I left and went to the waiting room. I listened to other families with children that needed the stem cell therapy.  One thing that was common for all of us we were full of hope, love and admiration for our children no matter what difficulties they have. We were all there for the same reason, we wanted to make our child's lives a little easier.  I was deep in thought thinking about Jada's future, The time passed amazingly  fast. Soon the Doctor called out she is done. We went off to her hospital room. She looked so angelic sleeping in her bed. I anxiously waited for her a awake. 

 

Jada had a good sleep after she woke up she listened to music on my I touch. She did very well. She did not seem to be in any discomfort. Late afternoon we went back to the hotel and she ate. 
That evening she had no discomfort she was busy bouncing on the beds and playing. The next day Jada and took a train to town, Her hip was not sore at all.
Here she is after the stem cells were implanted. She woke up pleasant,  played games and listened to music until they let us go home.  The doctors and staff were very nice.
Here she is at the end of the day. She is sore, but not sore enough to cry.  That's why she is laying on the bed to eat. She had a pretty restless sleep that night, but then again all our nights were  mixed up because of the time change between Germany and BC Canada.  Friday we took it easy, we did go out to a toy store.  She managed pretty well, she was tender but not so much that it made her cry.  We flew home Saturday 
   

Updated  February 6 2011

Well what a year it has been. Jada just gets happier and easier all the time.  We are still on all diets gluten free, raw dairy (our own cow ) sugar free, and SCD refer to our first page for more info on that. We stay away from box food , can food and raise  our own meat.    I really think to get all the improvements we have gotten in Jada keeping her on all the above diets is imperative this goes on twenty four hours a day 7 days a week,  even on Birthdays and Christmas.   Today I was going through some old receipts 2 years ago I bought Jada a big expensive 5 point harness car seat so I could keep her in her seat. She had grown out of the old one in  weight and would not stay in a booster seat. Well today she sits in a booster and puts on her belt , how thing have changed in such a short time.  Not that long ago she started telling me she loved me that was a great day for me. Just the other night Jada asked for a kiss goodnight she had not done that since she was  1 year old.  Life is getting easier for us as a family it almost seems normal, we can anywhere even hotels and Play land it can be a fun experience for the whole family   Below is a testimonial I wrote for the X-Cell Center in Germany

 

My husband and I are extremely pleased with the progress that Jada had made since February 2010. The positive changes  in Jada have made our whole family life much better in every way. Jada will tell me she loves me, where as before she could not tell me how she felt.  Jada is much calmer, happier, sleeps better, speaks more in sentences about her thoughts and need, she is more adaptable to changes in daily life. Jada can now dress herself and all her personal hygiene. Jada greets people, where as before she had no interest. Before when her grand parents would come over to visit she would not even bother to say hi , now they are greeted with a big hi grandma, hi grandpa.

            Our stress level as parents dealing with a child that has autism was extreme.  Now our stress level has greatly gone down. Jada's own stress level and frustration level  has gotten much better. As time goes by with her healing process her quality of life is getting better  by the day. There is not a week that goes by that Jada doesn't do something new and unexpected. December 3 2010 Ken came home after work, Jada was sitting at the computer watching a movie she said " Hi Dad How was your day "  that was the first time ever she had said that.     

Below are some letters from people that know and work with Jada.

     

 written Oct 12 2010

Hi Shannon , I would like to mention that I only work with Jada for therapeutic swimming.  I am sure there are many more things that have improved for Jada that I am not aware of because of my lack of knowledge of her everyday routines. 

 I have worked with Jada weekly on an ongoing basis for one full year of Therapeutic Swimming (T.R. swimming). 

The routine in the past has been that Jada and myself with two other E.A's. and two other therapeutic swimmers meet at the pool with the Speech Therapist and Physiotherapist in a social, physical, emotional, cognitive therapeutic swim session.

We all get got into the pool and adjusted to the water for approximately 10 minutes. At that time the group got together and played social games with balls and other pool toys. The purpose was to improve social interaction skills, improve gross motor skills and speech therapy skills among other benefits.

 On Wednesday, October 6th, we had our first week of swimming in the second year. I have noticed some significant changes in her. 

  *Jada in the past has yelled for me to stop singing if I was singing. This week while in the pool I started to sing a short rhyming song to her.  She did not ask me to stop. When I asked her to sing with me she sang the main chorus of the song with me! Later I asked her to sing and she sang the same part again on her own! 

 *Jada last year, would only walk down the steps of the pool and stand on the stairs for the first part of her session. In the latter half she would sit on the edge of the pool and play social games with the other participants and leaders of the program. At times she was required to stand on the island (small platform) and actively participate by standing up in the pool with the others. She was required to walk to the end of the platform at least once a session. This was not an easy task for her, but she was successful.

 *This week Jada swam around the pool from the shallow end of the pool to the deep end twice using a noodle.  She swam down to the end of the pool and rang the bell that is attached to the swinging rope.

 * This week Jada swam (with her noodle) to the middle of the pool edge, exited the pool and entered the hot tub.  In the past Jada would only leave the pool via the stairs or the edge of the pool and walk down to the hot tub.

 *This week Jada played in the hot tub without needing to walk around the edges or having to ask other swimmers to excuse her.

 *This week the pool staff had put out 3 islands for our use. Jada went from island to island without any problems using her noodle.

 *This week Jada shared the small plastic kiddies' pool with her brother and me. Jada added water and splashed around.

 It should be noted that one of the other students was on the pool side due to a stomach ache.  The Speech Therapist was also away. The E.A. from the other school was also delayed in getting into the pool, therefore the Physiotherapist supported her student until the E.A was present. Jada's younger brother and her mother were also there. The routine that we normally did was not facilitated due to so many changes and disruptions.  It will be very interesting to see Jada actively participating in the regular program in the future. I am very excited to be working with Jada and her team.  Jada has improved immensely since June and I look forward to seeing what other achievements she will master in future sessions.

 Thanks,

Ardice McCrea

 Education Assistant / Therapeutic Recreation

Fulford Elementary School

________________________________________________________________

 

Observations about Jada's changes: written October 12 2010

1.  I think what strikes me the most is how affectionate she has become since going to Germany. Before going, she really did not want any body contact at all. If I tried to tickle her, she'd ask for 'stop'. Immediately after her stem cell replacement she began to like being tickled and we even began having a 'tickle' break in the sunshine room. She enjoyed being rolled up into a hotdog with mats. Since that time, she has become very affectionate and really likes body contact, and often initiates it herself. Whereas before, she wouldn't have anything to do with funny interactive rhymes and songs such as 'Three little monkeys swinging on a tree...', now she asks for them and loves them. It helps in redirecting Jada and keeping her busy and happy during stressful times and waiting times. We also can have lots of fun together now as she joins in with this type of play. Much more playful! She seeks interactions much more.

2.  Jada is more relaxed. I've noticed so much more improvement since she's come back from summer holidays. She doesn't need the bathroom door locked anymore, lights are not an issue, she joins the class on the rug with no problem, and even though she still takes the white board and markers with her, she usually doesn't even bother writing anything. She may protest over something, but seems to get over it much quicker and accept what she needs to do. Jada can wait with much more patience than before. Lining up and waiting for the bus at the end of the day is not an issue at all. She is able to wait in class lineups easily.

3.  Jada's improvement with initiating greetings with adults, using their names, was amazing after she returned from Germany. Last spring, she would go down the hall and happily say "Hi ________" to various adults. She even greeted a few peer, though not always with the correct name. She continues to do that this Fall, but perhaps not as much as last Spring. But she always says hi when prompted.

4.  This Fall we've seen Jada interacting with peer during choice so much more that last year. She's very interested in what the kids are doing, and gets right in there playing with them when they're playing Marbleworks, etc.. She's not yet very verbal with the others, but interacts by physically joining them and using their creations with them, rather than just parallel play.

5.  Last Spring I really noticed how much more verbal Jada had become. She was able to sequence cards and tell me about the order of sequence using her own words. I would show her picture cards and ask her to tell me 'the story' and she was able to tell me what was happening in the picture. It was a huge improvement. Very exciting.

6.  She's been able to express how she's feeling so much more. When she's unhappy, she will use descriptive words to express her tears, etc.


I hope this is helpful. If I think of other changes, I'll email you them. I'm sure I'll remember more as time goes on. Elodie

_____________________________________________________________

written Oct 3 2010

Shannon, Jada,  the 8 year old.

 I hadn't seen her for a number of weeks because of colds and flu in the family. I was in for a surprise!

I walked into the room where Jada was alone. Instantly she greeted me with a big warm smile of recognition and a "Hi Grandma" in a clear voice tone. Her beautiful dark eyes met mine and I felt that deep connection that had often been so illusive in the past. She hugged me and then after a couple of minutes ran down the hall to her room. She came back a short time later, when her Mom was there and continued to interact with both of us giving me more hugs. She wanted me to pick her up but understood and didn't pursue the matter when I told her that she was too heavy for me.

 Helen,  the Happy Grandma

 ______________________________________________________________

 I would  totally recommend X-Cell center for stem cell treatment. It has made huge positive changes in our lives. We are able to have a normal life going to stores, school, out for meals , with all good behaviour.  We are planning to take our son Kaden in 2011. Please feel free to email us if you have any question. Ken & Shannon Tara Salt Spring Island BC Canada.   shannontara@shaw.ca

 

 

 

 

As you can see life is great for us. Jada still has autism but everyday that goes by we get a little of her back. She has come along ways since she was diagnosed with autism her healing continues . Every week she does something new that amazes Ken and I .  This spring  2011 we will be taking Kaden to the X-Cell Center. I will update this page when that happens.  Our kids are now 10, 8 and 6 .